My Brothers ALS Dream

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My Brothers ALS Dream

Post by Killroy-420- » Wed Mar 21, 2018 11:15 am

This is long, but I'm going to ask you all to take a minute and read it.

Last year my brother Andrew began to experience some problems with his legs. He was having charlie horses and muscle spasms every day. By the end of the summer, his pain was constant and he required canes to walk. By Christmas, he wasn't able to walk around a grocery store or take his daughter to the park. In January he was diagnosed with a rapid form of ALS (Amyotrophic Lateral Sclerosis). Right now he has limited mobility and requires a walker to get around. Very soon he will require an electric wheelchair. Andrew is unable to work. His partner cannot work as she is caring for both Andrew and their 7 yr old daughter and two grandchildren.

Let me tell you what I've learned since January. You cannot get a progressive, degenerative, fatal disease and not have private benefits. The electric wheelchair is just one example. OHIP only covers 75% of an electric wheelchair. An individual with ALS cannot wheel themselves around and will eventually get to the point where they need to be strapped into the chair for their own safety. An electric wheelchair is a requirement - just one of many needed for living with this horrible disease. Stephen Hawking was able to live with ALS for 45 years because he had the financial means to do so. To buy the equipment, the caretakers, the treatments. My brother doesn't have those means.

I know my friends are the charitable sort. So I'm doing something I wouldn't normally do and asking for help. If you just take the $20 donation you would normally make this month and donate to this Go Fund Me we can help get my brother some of the equipment he will need to live with ALS. And my 7-year-old niece needs every day she can get with her Dad.

Please consider donating. And thank you.

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Re: My Brothers ALS Dream

Post by BigRC » Fri Apr 06, 2018 10:02 pm

Hi Kilroy. Sorry to hear about your Brother. ALS is so devastating. Have you tried some of the organizations below? Prayers for you and the family.

Financial Help for ALS Patients & Families – Amyotrophic Lateral Sclerosis
ALS Foundation for Life
(508) 655-4381
About ALS Foundation For Life: The ALS Foundation for Life is committed to providing funding for medical equipment, home modifications, and technological devices allowing patients some independence and sense of dignity.Their goal is to reach out into the ALS community to offer assistance and make an impact on the lives of patients and their families.

ALS Guardian Angels
(949) 488-9894
About ALS Guardian Angels: ALS Guardian Angels grants help families with expenses not covered by Medicare, Medicaid, insurance and other reimbursement programs. Recipients may apply for and receive grants up to $1,500 each. The group offers a respite care fund, a medical equipment fund, vacation and transportation funds, and a home modification fund.

Voice for Joanie
(860) 350-9034
About Voice for Joanie: Provides assistive technology devices to individuals who have Amyotrophic Lateral Sclerosis and other debilitating diseases.

Fifth Season Financial
About Fifth Season Financial: Fifth Season Financial offer the Funds for Living and Giving (FLAG) Program, a financial assistance resource that helps relieve the financial burden experienced by many people with serious illness like ALS. Fifth Season’s program provides funds to people living with cancer or any other serious illness by using their life insurance policy as collateral. The funds you receive have NO RESTRICTIONS. You choose how you want to spend your money. Pay bills, take a vacation, or give a gift to someone you love. It’s your choice! The FLAG Program has provided over $75 million in funds to hundreds of families. Learn more: http://www.fifthseasonfinancial.

The Oley Foundation
(518) 262-5079 / (800) 776-6539
About The Oley Foundation: Provides an equipment/supply exchange to consumers of home parenteral (IV) and enteral (tube-fed) nutrition (homePEN) for patients requiring enteral/parenteral care, including those with cancer, Crohn’s Disease, HIV/AIDS, Amyotrophic Lateral Sclerosis, Parkinson’s Disease, Stroke, Cystic Fibrosis, and AIDS.

Muscular Dystrophy Association
(800) 572-1717
About Muscular Dystrophy Association: The Muscular Dystrophy Association provides several types of assistance to individuals who have neuromuscular diseases, including those with ALS.

The Edward T. Strauss Memorial Fund
(732) 283-2747
About The Edward T. Strauss Memorial Fund: This fund was established in memory of Edward T. Strauss, who lost his life on 9/11. “With Eddie’s Help”, Inc. works closely with ALS patients and equipment manufacturers providing the financial support which enables ALS patients to acquire this basic life sustaining equipment either by becoming their medical insurance co-payee or in some cases, providing full monetary support. We will continue to provide ALS patients the financial assistance that will allow them to live out their lives with as much dignity and comfort as possible.

HealthWell Foundation
(800) 675-8416
About HealthWell Foundation: The HealthWell Foundation reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases.

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